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The First Step

9/29/2015

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If I were to say `God why me?` about the bad things, then I should have said, `God why me?` about the good things that happened in my life. - Arthur Ashe.

Medical practice is inundated with the breaking of bad news to people. Right from the beginning of training, this act of empathy is imbibed into healthcare professionals, which eventually develops into an art. The reaction of patients and their families are varied, which never follows a pattern. The apparently stoic person may break down a few days later, some react with shock, despair, disbelief, denial and helplessness while others are positive , organising their lives with the available and seeking further resources. The diagnosis of a chronic disease is sometimes nothing short of a bereavement.

An often overlooked aspect is preparation and education of the individual. Though it is imperative that the population is aware of the disease process, it is more vital that actions are shown by results on the ground. Our experience over two decades shows that on average the person is aware of diseases, but is confused with multiple messages and information overload. Though we would expect the younger generation to be more suave in specific instances it has been proved otherwise. A 28 year old software engineer, a newly diagnosed diabetic with a foot ulcer believed that all he needed was healthy diet and exercise and he would be cured. A 45 year old gentleman diagnosed with diabetes was in complete denial because he had never taken any sugar with his drinks and believed that his diet was healthy. A 58 year old diabetic person wished to sue the car manufacturer following an accident because believed that the brakes were faulty. He had been a diabetic for 15 years and was on insulin. Three of our close friends and family have been found dead in their homes. They were all on insulin for diabetes of long duration. One of them was a widower and the other two had a tumultuous relationship with their wives over the past year and had been living separately. A 58 year old billionaire businessman was suddenly admitted for diabetic coma. He had not checked his sugars for the past 2 years and did not know his dose of insulin.

It is easy to fix blame on anybody, the person delivering the messages, education delivered, the person following the instructions or even the people aiding them, but the fact remains that in this conundrum, lives are being changed and lost. This means that this entire system needs to be looked at more closely and carefully and the process tailored in such a way that process is simplified keeping in mind individual perceptions and ability to take appropriate action.
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The first step in this process is preparing the population to a likely eventuality of developing a chronic disease. In a departure from traditional measures is a newer method called social marketing, which applies commercial marketing strategies to promote public health. Social marketing is effective on a population level and healthcare providers can contribute to its effectiveness. Social marketers use a wide range of health communication strategies based on mass media; they also use mediated (for example, through a healthcare provider), interpersonal and other modes of communication and marketing methods such as message placement (for example, in clinics), promotion, dissemination and community level outreach. Multimodal communication channels including electronic and social media are very useful.

One of the key decisions in social marketing that guides the planning of most health communications is whether to deliver messages to a general audience or whether to `segment` into target audiences. Audience segmentation is usually based on sociodemographic, cultural and behavioural characteristics that maybe associated with the intended behaviour change. Social marketing is an effective way to change health behaviour in many areas of health risk. Doctors can enforce these messages during their direct and indirect contact with patients.

The goal of social marketing is not just to make the population aware, but inspire people to make appropriate changes to their behaviours for better health and in the event of a diagnosis prepare them to rapidly adjust to a lifestyle that is conducive to the problem.

This process is easier said than done. A prescriptive attitude maybe met with resistance and failures and such campaigns need to be pragmatic and iterative so that failures can be addressed with better strategy
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The Equilibrium in healthcare

9/14/2015

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As the years clock by, we doctors develop the art of keeping the emotional response to death at arm`s length as this is not an infrequent occurrence. Trauma and grief gives way to disappointment and frustration. But when it strikes close to our hearts and homes, all the well-engineered defenses built over decades come crashing down like a sandcastle on the beach obliterated by a giant wave. 


With 1.5 million deaths in 2012 alone ; 347 million people living with and an estimated 175 million people undiagnosed with diabetes, this is nothing short of an impending Tsunami. More than a tenth of humanity is being gnawed away even as medicine and technology advances at such a rapid pace.


Nothing you did not know, but when you are confronted with writing the obituary of a friend or a close relative, when messages fly around the world, twitter tingles and Facebook jingles and we sit huddled and comfort each other and vow to be there for each other, somewhere from the ivory towers of the great institutions of the land to the occasional friend, there are the pangs of guilt – have we done enough?




















Diabetes affects every part of the human body, but what often is in the blind side is the psychological and emotional issues surrounding it. The issue is complex and whether it is a cause or effect or both is a matter of research and debate. The disease needs frequent monitoring, interventions, numerous clinic and hospital visits and after a while control becomes difficult. Both high and low blood sugar takes a great toll on the human mind and the emotional response to them is not the same for everyone. Relationships suffer and sometimes one can see the personality of a diabetic changing multiple times a day. As much as close friends and family support can be crucial, they can also be a source of stress as care can be perceived as intrusion, which is counterproductive. This can lead to neglect and a downward spiral of the condition and be eventually fatal.

Thus diabetes control is much beyond controlling the blood sugar and its complications. The last decade has seen a paradigm shift in medical practise from intuitive medicine to more precision medicine. There has been interest and emergence of newer digital technology to help monitor and treat patients better, most of whom are truly inspirational and welcoming.


The challenge is to build not just medical and allied support, but also to community support using traditional, modern, digital and non-digital means which is robust, affordable, trustworthy and most importantly not too intrusive keeping in mind the individual, families and carers so that life can be lived. Though there is a need for uniformity of global care, there will be geographical and resource diversity, which has to be managed with innovation and excellence. It is this equilibrium in healthcare that we have set out to achieve and implement which is the guiding force in our endeavour.








 


 

 







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